YouTuber Adalia Rose died at the age of 15 from an uncommon genetic condition.
The US teenager had been diagnosed with Hutchinson-Gilford progeria, which is also known as Benjamin Button disease, when she was three months old.
It is a rare and serious condition which causes problems with growth and features that resemble early ageing.
In an Instagram post, Adalia’s family said she had touched millions of people and left the biggest imprint.
Adalia Rose, a YouTuber with Hutchinson-Gilford progeria, died at the age of 15 from the genetic condition.
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Adalia Rose, who came from Texas, had almost three million YouTube subscribers and shared different tutorials and what it felt like to live with her condition.
“She came and left quietly, but her life is far from it,” her family said on the Instagram post.
She is no longer in pain and is now dancing away to all the music she loved. I really wish that this was not our reality, but unfortunately, it is our reality.
“We want to say thank you to everyone who has loved and supported her. Thank you to all her doctors and nurses who worked for years to keep her healthy.
Hutchinson-Gilford Progeria Condition
Progeria, which is also known as Hutchinson-Gilford syndrome, is a serious, uncommon, progressive genetic disorder which makes children age fast. It starts in their first two years of life.
Children who have progeria generally look normal at birth. During the first year, signs and symptoms, like slow growth and hair loss, start to show.
About 500 children around the world are affected by Hutchinson-Gilford progeria. People with the condition have an average life expectancy of 13 years.
About 500 children around the world are affected by Hutchinson-Gilford progeria.
People with the condition have an average life expectancy of 13 years.
